Friday, May 14, 2010

Wait and wait some more....

Well they did present my case today but were unable to list me yet. Everything went well, but they realized that I had not yet met with the surgeon and that is a requirement from the program for listing. So we now have an appointment for next Thursday at Columbia Presbyterian to meet with a surgeon. I was informed that immediately after the meeting we would be officially listed. So I'm a little pissed off at the last minute hold up, but happy that we are moving forward.

Yesterday I received the vaccinations that were needed and man did I feel it last night and today. I could not sleep all night and kept alternating between burning up and cold teeth chattering chills. Today I'm sore, but feeling much better than I was. I'm making sure to take Advil every four hours just in case.

For fun here is a picture I just got today from the campaign from when Vice President Biden was in town for us...

I don't think VP Biden ever takes a bad picture. Yes I know he flubs a line here and there, but he is a really nice guy.


  1. Been following your blog for a while. Great pic. Sorry to hear about the not listed. Glad you will be listed as soon as that meeting with the surgeon is done. Blessings to you!

  2. Than you Gina, I often wonder how many people out there read my ramblings. I see you have a 26 year old son, hope he is doing well.

  3. Nice pic Jim!
    Thanks for your comment on my blog recently - don't worry about the hard stuff just post transplant - it all gets better and then is just amazing. You'll be back in the gym and on those weights in no time.

    Your descriptions of life and limitations with CF are very raw and real - make me remember the feeling of being utterly wiped out by a strenuous (or not very strenuous!) activity. The best thing about transplant is getting back that ability to get tired, but tired in a healthy way, where all you need is a good sleep and you'll be fine.

    Get yourself seen by that surgeon, get on that list and stay as fit and well as possible. Good luck!