Well Picc insertion is set for 12:00 today. Going to do Tobra and Aztreonam again, same as a month ago, and stay on the oral Zyvox for the remaining 5 days. I got my last good night of sleep and full shower in for the next few weeks. I do look forward to starting to feel better and hopefully for longer this time. As many have noted the main thing now is to try and stay in as good a shape as I can for as long as I have to wait. Better to be in my best possible shape prior to transplant.
On a positive note Jess is out of bed and walking post transplant...way to go Jess! Steph has her chest tubes and staples out now and is putting some serious miles on those new windbags...Way to go Steph too!!
My other transplant friend Piper is still hanging on and working it out while she waits, much like myself....Our time will come, no doubt!
Wednesday, April 21, 2010
Monday, April 12, 2010
Good while it lasted...
Well I have been IV free for a few weeks now and have tried to take full advantage of it. I got a ton of outside activities in , even rode the lawn tractor around a few times to cut the grass (with a mask on) and of course drove the M around as much as I could. Denise and I took the opportunity to go out for some fine dinning a few times and I even shared in the grocery shopping duties for a change (smile). I was down to visit the CF team at Morristown Memorial last Tuesday, my weight was good at 158, but my lung functions were surprisingly unchanged at an FEV1 of 24%.
It was a really nice break, but now it's no more CF maintenance plan and back to the real active CF infection world.
Saturday morning I was coughing up some blood (only a few table spoons) and was short of breath, but it passed. Yesterday morning I woke up early and very achy and not moving much air, so I got up and took some Advil and relaxed on the couch. I kind of laid around most of the day other than going to Lowe's with Denise for a quick trip and then more rest, at about 5:00 we went to Callahan's for a cookout, but I was not feeling very well and came home. At about 8:00 I took a shower and then proceeded to alternate between chills and sweats for the rest of the evening my temp was 100.1 when I checked it. I slept in this morning till after 10:00 and no fevers so far today, but have a dull ache in my upper right lung. Being the astute student of CF I am, this obviously all leads to the need for antibiotics (35 years of CF knowledge not gone to waste :)..I was diagnosed at 5).
So I fired a message off to Paula and the word came back that Dr Fiel was thinking back on IVs again already. I called back to try and stave off the Picc for a little and we agreed to try some Oral Zyvox first. So day 1 of Zyvox begins today.
On a very sad note last Friday we had to put our cat Phoebe down after 15 years or so with the family, sad sad day...I miss her everyday, and really notice it at times especially like now at breakfast....she always liked to have a little milk after my cereal
It was a really nice break, but now it's no more CF maintenance plan and back to the real active CF infection world.
Saturday morning I was coughing up some blood (only a few table spoons) and was short of breath, but it passed. Yesterday morning I woke up early and very achy and not moving much air, so I got up and took some Advil and relaxed on the couch. I kind of laid around most of the day other than going to Lowe's with Denise for a quick trip and then more rest, at about 5:00 we went to Callahan's for a cookout, but I was not feeling very well and came home. At about 8:00 I took a shower and then proceeded to alternate between chills and sweats for the rest of the evening my temp was 100.1 when I checked it. I slept in this morning till after 10:00 and no fevers so far today, but have a dull ache in my upper right lung. Being the astute student of CF I am, this obviously all leads to the need for antibiotics (35 years of CF knowledge not gone to waste :)..I was diagnosed at 5).
So I fired a message off to Paula and the word came back that Dr Fiel was thinking back on IVs again already. I called back to try and stave off the Picc for a little and we agreed to try some Oral Zyvox first. So day 1 of Zyvox begins today.
On a very sad note last Friday we had to put our cat Phoebe down after 15 years or so with the family, sad sad day...I miss her everyday, and really notice it at times especially like now at breakfast....she always liked to have a little milk after my cereal
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