Wednesday, December 21, 2011

Lungs vs Legs


It’s been awhile so I figured I should update everyone. Again, no news on the blog is good news!

Things have been going great! Jim does have abdominal pain several times a

week but he says it’s something that he doesn’t mind living with compared to his old crappy lungs. He is also back to his normal weight (about 160 I think). Although he finds it hard to eat, he is really good about getting calories in him.

Mom, Amanda (a/k/a The Rock) and I went to NYC to see the play Wicked in mid-November. It was a great show and we had awesome seats. Why is the wicked witch the way she is? Is she really dead???? You have to see the show!

We went to my brothers’ house for Thanksgiving. The entire family was there; my 2 brothers, their kids (Andy, Amanda a/k/a The

Rock and Tyler), my sister-in-law, Jim and my parents along with Amanda’s boyfriend, Chris. We had the usual turkey, potatoes, green bean casserole (yuck,

everyone else likes it so I made it), sweet potatoes, corn etc. Here’s the standard picture of dad cutting the bird:

I had a second trip to NYC in the beginning of December. This

time it was with Jim…FINALLY! I’ve wanted to walk around NYC for many years with Jim but either we didn’t want to take the chance of him getting sick from the cold or his lungs wouldn’t allow him to walk around. Needless to say, we had a great time! We walked for miles with no need for a break except to rest our legs. We were even dodging in between people on the street because they were walking too slowly for us. Every once in awhile I’d look back only to find Jim either next to me or in front of me. Over 1 ½ years later and I still can’t get over him walking at the same pace as me. The joke of the trip was that Jim’s LUNGS worked fine but the LEGS…well, they were hurting both of .

The main reason we went to NY was to visit our friend Piper. She invited us to her 30th birthday bash. We’ve been trying to get together for awhile but timing seemed to be off. We met some new people as well (CF related and non-CF related). There were 3 double lung transplant recipients there (Jim, Piper and Kelley) along with another couple who are waiting for THE CALL. ---I'm hoping that call comes soon for Jerry and Jennifer!---

The following morning we got up, and headed to Starbucks. We then walked around a bit more and then met Piper, her parents and sister for lunch. After that Jim, Piper, her dad and I walked around the park and enjoyed the great weather.

There has been some sad news in the CF community. Within the past week we have lost at least 5 people that I am aware of. CF is evil!!! On a good note, I know of at least 2 people that have received their new windbags!

Thank you to Jim's donor and his family for letting us enjoy our time with new friends and family!




































Lungs vs Legs

It’s been awhile so I figured I should update everyone. Again, no news on the blog is good news!

Things have been going great! Jim does have abdominal pain several times a

week but he says it’s something that he doesn’t mind living with compared to his old crappy lungs. He is also back to his normal weight (about 160 I think). Although he finds it hard to eat, he is really good about getting calories in him.

Mom, Amanda (a/k/a The Rock) and I went to NYC to see the play Wicked in mid-November. It was a great show and

we had awesome seats. Why is the wicked witch the way she is? Is she really dead???? You have to see the show!

We went to my brothers’ house for Thanksgiving. The entire family was there; my 2 brothers, their kids (Andy, Amanda a/k/a The

Rock and Tyler), my sister-in-law, Jim and my parents along with Amanda’s boyfriend, Chris. We had the usual turkey, potatoes, green bean casserole (yuck,

everyone else likes it so I made it), sweet potatoes, corn etc. Here’s the standard picture of dad cutting the bird:

I had a second trip to NYC in the beginning of December. This

time it was with Jim…FINALLY! I’ve wanted to walk around NYC for many years with Jim but either we didn’t want to take the chance of him getting sick from the cold or his lungs wouldn’t allow him to walk around. Needless to say, we had a great time! We walked for miles with no need for a break except to rest our legs. We were even dodging in between people on the street because they were walking too slowly for us. Every once in awhile I’d look back only to find Jim either next to me or in front of me. Over 1 ½ years later and I still can’t get over him walking at the same pace as me. The joke of the trip was that Jim’s LUNGS worked fine but the LEGS…well, they were hurting both of .

The main reason we went to NY was to visit our friend Piper. She invited us to her 30th birthday bash. We’ve been trying to get together for awhile but timing seemed to be off. We met some new people as well (CF related and non-CF related). There were 3 double lung transplant recipients there (Jim, Piper and Kelley) along with another couple who are waiting for THE CALL. ---I'm hoping that call comes soon for Jerry and Jennifer!---
The following morning we got up, and headed to Starbucks. We then walked around a bit more and then met Piper, her parents and sister for lunch. After that Jim, Piper, her dad and I walked around the park and enjoyed the great weather.
There has been some sad news in the CF community. Within the past week we have lost at least 5 people that I am aware of. CF is evil!!! On a good note, I know of at least 2 people that have received their new windbags!
Thank you to Jim's donor and his family for letting us enjoy our time with new friends and family!

Friday, November 4, 2011

I know where I've been

These videos are from the Poker run. My friends daughter, Hailey Carson, sang "I know where I've been" which I thought was a great pick on her part (thanks Hailey!). She also sang the Star Spangled Banner and last but certainly not least is a video of the motorcycles headed out for the ride!!!! I can't wait to cheer on the riders next year!





The Friday after the event we attended a Masquarade Gala called The Finest: Top 20 under 40. Jim was one of the honorees for the event. He had a really nice speech that I have to figure out how to upload yet. It's too long so I need to split it into 2 files, somehow...



























Barb wore some really cool shoes so I had to take a picture of them!

As usual, thank you to Jim's donor and his family!

Thursday, November 3, 2011

I know...

...I know...
I haven't posted in a month!
We've been busy raising money for CF! Good excuse huh? So far the total raised is $12,704!!!!

On October 23rd we had our 1st Annual Steel Poker Run and it went fantastic! We were both amazed at how many people came out and supported us in our quest to fight CF. Our family and friends came together and did it all in just 8 weeks of planning! What a heartwarming feeling it was to see so many people come out and enjoy the day! Thankfully we didn't have it the following weekend because we had a major snowstorm and that would have ruined the entire thing. Here are pictures the generous photographer took. We also ended up on the local news channel...I didn't even know they were there! Here is a thank you from Jim and I. I will never forget the feeling I had when I was standing on that stage and looked out at all the people that came together. There was such a strong sense of community. I met so many amazing people through all of this. I cannot wait until the 2nd Annual. It will be much better since we have all year to plan!























The venue the evening before...