Well I just heard from Columbia Presbyterian and have an appointment set for Friday Apr 23rd at 2:00 (they first said may 7th but I balked). I'm not sure with what Pulmonologist we will be meeting with, but the person I spoke with said "she" can meet with you, so looking at their site narrows it down to three doctors. I asked what the intent of the appointment is and if I needed to prepare at all for any testing and they said no preparation needed it's just an interview. I pointed out that they have all my records from Penn and they said yes they did and they were already reviewed. I asked further if I was a candidate for transplant and they said yes or I would not be having the appointment. I can't wait to get this meeting in, and hopefully get dual listed. I'm very lucky to be within 2 hours of two of the best transplant clinics in the country.
A quick update on my health, I'm feeling pretty darn good. My last day of the three week IV course will be Friday. Unfortunately my last dose is scheduled for 10pm and so if I follow that the picc line at best can be pulled on Saturday morning. I know getting someone out on a Saturday is a long shot, so I called to try and get it pulled on Friday instead. The intent would be to just skip the last dose, we will see what happens. With the weather touching 70 degrees and sunny I am hoping to get out and about some and try to work on my stamina. I would love to try and lift some weights while I'm feeling so well since that's what I enjoy most, but not sure I really can.
On another note, I can finally announce that VP Joe Biden is coming to town on the 15th to hold an event for my friend John's congressional campaign. Needless to say this is a big deal, we can really use the support.
Yay!! I'm really glad you're getting listed at multiple places too, covering all your bases. My advice would be to start with just walking. Walking is hard with such little lung capacity, but I know you can do it! I am!
ReplyDeleteThanks Jess, I did get to walk around my yard some today. Problem is I just see things I would like to get done in the yard....lol
ReplyDeleteDude - that's awesome.
ReplyDeleteWell, the yard is cleaned up! We've go 2 garbage cans filled to the brim with sticks. Oh, I also took down the sled and ice skates from the front porch and replaced it with a nice white rocking chair and moved some tulip bulbs to better spots. Spring has sprung! :)
ReplyDeletesuper cool! ~Plus congrats on getting things done around your yard. I think you are on to something. . .stay active & do what you can!
ReplyDeleteOh Denise did the work....I only supervised, and poorly at that...lol
ReplyDeleteJim- glad to here your feeling better! Spring has definitly sprung! Hope to see you and Denise at John's rally!!
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