Wednesday, March 7, 2012

Making Up for Lost Time


Jim and I just spent 2 weeks in Florida and had an amazing time! Last year I met my parents there for a few days while Jim was just returning to work post-tx. In 2009 we tried to cut the trip short because Jim got extremely sick while we were there but we couldn't get a different flight so stayed. When we got home we made arrangements right away for an appointment with his CF docs in Morristown, NJ. Once we got there, they checked his stats and put him on oxygen immediately. Needless to say, we came home with an oxygen tank. Soon thereafter came deliveries of tanks, a concentrator with an oxygen line long enough for him to move all around the house and a portable one as well.

I can't really recall when they actually mentioned transplant first but I do remember sitting in the office totally blown away by the idea. How does someone digest this sort information? How can this be? How did we get to this point? Why did it seem to happen so quickly? What next? Will I become a widow at the age of 38? None of it felt right...
We only knew of one person that had a double lung transplant at that time.

Fast-forward to December 2010 and Jim made the decision that it was "Transplant or Bust..."
So we went through the evaluation process,waiting, dry runs and waiting a little more until we got the real call

Fast-forward again to Feb/March 2012 and here we are!
Ready for take off!

We really made up for lost time!

Jim and Jesse (CF family) finally met:

I met Jesse and his wife Kristen last year. Here is Jesse's blog about this night and here is Kristen's.

And I finally got to meet some amazing women married to CF'ers that I have been talking with for awhile on a Facebook page called CF Wives. If there any wives, partners or fiancé's out there interested in "meeting" a fabulous group of women that understand the life of a woman married to a CF'er, sign up on Facebook! When I walked into the restaurant I picked them out pretty quickly. It seemed as if I knew them for years. We had a great time talking and laughing. Then came a moment when someone in the restaurant sneezed or coughed. I'm pretty sure we all gave each other looks like "what the heck does that person have and stay away from me". At some point a few of us wipped out the hand sanitizer as well.


One of our day trips. This is West Palm Beach!

Day trip to Cocoa Beach:
Ron Jon Surf Shop at Cocoa Beach


Daytona Beach day trip:


Harley Davidson - Daytona Beach

I'm pretty sure this is my dream job! Running a winery and being able to take my dog to work with me every day with a perfect view of Daytona Beach from the front door. Can someone PLEASE explain why I haven't changed my career path yet?

Jim at the Wizarding World of Harry Potter in Universal. Being the HP fan that he is, he was like a kid in a candy store!
Mmmmmm Butterbear and Pumpkin Juice

Jim getting his carmel apple in Downtown Disney
One of the days we just took a ride to see what we could find and guess what we stumbled upon? A winery! So, we did a little tasting and I got some wine shipped home.





Spring training games:
We go several balls signed. I even had a little conversation with Reggie Jackson!
My Parents

This sounds repetitive, I know, but this would have never been possible if it weren't for his amazingly selfless donor and donor family.

One more thing - fundraising time is starting up so if you are interested, here is the link to join Team Sheldon and Friends in the DASH for Organ and Tissue Donation Awareness!

And please don't forget to register to be an organ donor!!!