It's hard to believe, but the day has come already. This morning at 6:45 am (after a morning pee) my collection has officially started. I look at this bottle and wonder....is this a challenge! Shall I try to fill it (3500 ml)....LOL.....
The bigger thing though is this means the transplant evaluation is finally here!
Tonight after Denise comes home from work we are off to the Sheraton in Philadelphia that will serve as our home for the next three days. We will of course do our best to have some fun while we are there going through all this crap (you know me, I'll find a way). If it was warmer out we could of course go and see some of the sites. Although we get to Philly often, we really don't do very much site seeing there. I'll try and keep people posted on what is going on with everything when I can.
This really is exciting stuff! I'm looking forward to getting this testing behind me and to start focusing on what I can do to now prepare for the surgery and start to look to a secondary clinic (most likely Columbia). Being listed at two places increases your chance for a speedy transplant.
On a sad note, we decided this week to skip our yearly two week trip to Florida. The Yanks and Phillies will have to start the season without me this year. It's sad not to get away, but it's the right thing to do all things considered. It just doesn't seem right to go away with all this pending right now. Hopefully by next February I will have new lungs and be healthy enough to really enjoy the trip.
I am so excited for you! Good Luck on your 3 day evaluation process. It wears a bit on ya, but you'll do fine. Definitely keep us posted. Best Wishes to you and your family traveling with you.
ReplyDeleteI hope you'll be all recovered by next February too! You'll feel so relieved once the testings done.
ReplyDeleteThank GOD we finally have a pot to piss in!
ReplyDeletei think evaluation is the hardest part. (it was for me anyway)
ReplyDeletegood luck with that -- enjoy a huge sigh of relief when it's over!
Dear Jim And Denise,Glad that this part of your journey has finally arrived for you. We know that you will pass the tests ! You are both in our hearts and in our prayers. We will be there for you with anything you need. Good Luck, Love Aunt Nancy & Uncle Keith
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