For whom the bell tolls...

Caught metallica today on the Rock and Roll Hall of Fame 25th anniversary concert....they rocked....great show, U2 and Springsteen awesome as always....a must see for true music fans

Well no better today, no lung pain but muscle ache is real bad. Exchanged emails back and forth with Paula (CF nurse) and Dr Fiel...they did not want to change anything until they see me tomorrow. Going in expecting lower Pulmonary Functions (PFT) and body weight and full well expecting to leave with plans for IVs. The only questions will be which ones and when I can get the pic inserted. I'm sure they will prefer to keep me, but I like homecare much better.

Oh, and if or how much Prednisone of course....yuck, that shit really messes me up (but works really well)....

The way I am right now is coughing up a bunch of green crap. I cough now at times till I'm gasping for air (even with my oxygen on). It's a very strange feeling when your body is oxygen deprived. You feel like your losing control of your body like your going to piss yourself or evacuate your bowels all at the same time...keep in mind your coughing uncontrollably at this point too. Quite scary experiance everytime it happens.

I'm ready for a course of something that gets me moving in the right direction now. I have not been out of the house since last Monday night. I missed the Schedule Meeting this week, sigh....will have to follow up....The Web page for the campaign is looking good by the way, will be up and running soon!...

Things are not looking good for me right now, but as metallica said...

For whom the bell tolls
Time marches on
For whom the bell tolls

Sunday update

Fair warning to all, I plan on documenting things in my own terms (no points for spelling or grammar), some things will not be pleasing to all and quite upsetting to some....I apologize up front to any who are offended...

Well as most anyone reading this already knows I have not been feeling well of late. Today is day 5 of taking the antibiotic (AB) Doxycycline. Doxy is not one of my favorite AB as it causes me quite a bit of nausea and makes my asthma act up considerably. It was chosen simply because I rotate between three oral AB and Doxy was next up in my rotation. Since I'm allergic to many of the available oral AB my choices are really limited. Tuesday morning (11/24) thanks to some vigorous coughing and Doxy's nauseating effects, I vomited up a bunch of junk (some blood streaked mucus, but no real blood), but have been able to keep it all down since then.

The good news is that the excruciating pain I have been experiencing since Monday night has reduced to a dull ache. It was weird, I was sitting in a scheduling meeting at Callahan's headquarters and breathed in, next thing I knew there was a searing pain all around my middle. After that every breath had to be shallow or I would get shooting pains circumferentially around my chest cavity and up my spine. Luckily the meeting did not last long. Considering I usually live on bronchodilators and Advil anyway (along with 3 other oral meds) the pain made me add Percocet to my daily mix of meds. It's a good thing I can stop taking the Percocets now (really only took a few anyway) because its too easy to get hooked on those things. I use them sparingly since addiction runs in my family.

I have my normal check up with Dr Fiel (CF specialist)on Tuesday, so we will see what happens then. I'm quite sure I will need some IV ABs for a few weeks to get things moving in the right direction. I have been pretty bad with my calorie intake and know my weight is way down too. Shortness of breath coupled with reduced weight usually equals IVs. I have been keeping the Diabetes in control though!...LOL

I hope to feel better before the President comes to town next week....

Well enough for now.....

My first official Blog

I was driven to this by some ofthe great efforts people are making on the web....not sure if anyone cares to read my crap, but fuck it I'll post it anyway....