Christmas Morning at the Fahr's
Dharma poked her head into the pic!
I already received the best gift in the world on May 19/20, 2010! The gift of life for Jim. I really wasn't sure if Jim would be around for Christmas this year... This is a very special Christmas filled with joy of a new life for Jim and also sorrow for Jim's donor's friends & family. May they know that their loved one is still living on and allowing Jim to breath easy and also enabling us to enjoy a whole new world of possibilities!
OK - First things first:
We went to HUP last Turs. Jim got a CT scan of his chest to try and help identify why he has so much pain in his sternum. The scan came back normal. The doctor showed us the scan slice by slice and said Jim's lungs look "beautific" (I guess that's a cross between beautiful and terrific). Since the CT scan didn't show anything worrisome they are going to wait it out a bit and if he still has pain when he returns mid Jan they will have the surgeon take a look at him. Dr. Hadj. said that it was probably from all of the retching he was doing the week before. Upon examination he said it felt like bone growth may be happening around his sternum or wires could be poking or changing their position.
CMV levels are going down more which is a good thing. He is at 491 but they need to get him to 0. Once he hits 0 they will continue him on the Ganciclovir for 2 weeks and then do monthly infusions of CMV IG. His white blood count is working its way up to where it needs to be as well. As far as the A1 rejection goes, Dr Hadj said that often the CMV may look like A1 rejection when the pathologist looks at the cultures because the CMV has the lymphocytes that they find in A1 rejection. Another bronch will be done near the end of January so hopefully by then the CMV will be in check and there will be no sign of any sort of rejection.
After the holidays Jim will be getting an ultrasound on his right leg as it has been swollen off and on lately. Dr Hadj wants to make sure this is nothing of concern going on. He also will need to have his gallbladder removed since he's got a "bag o' stones" in there.
Doc also said that he has a little bit of CF liver disease but not enough to say much about.
And the best part about the visit? PFT's are at their ALL TIME HIGH since transplant!!!
While Jim was speaking with one of his doctors we also heard that our transplant coordinator was in the process of coordinating a transplant for someone. The hospital has done 7 transplants in the past week and a total of 51 so far in 2010. Check out these statistics and you can get a
better feel for how luck Jim and I are! To be honest, I really wasn't sure if Jim would be around this Christmas or not.
Christmas Eve at my brother and sister-in-law's house
Jim and my dad a/k/a Pop Pop
Me and Amanda
Abby and Dharma opening their gifts:
Jim and Dharma
This is Zoey. Isn't she the freakin' cutest kid you've ever seen? She is our step-niece's daughter. We met her for the first time at Jim's mom's house for Christmas dinner last weekend.
And now for a few notes from Jim (as copied by me from his Facebook page)
Feeling so happy and sad today. Happy for myself, friends and family but sad for my donor and their significant others. I would love to reach out to them today to show them what they have given me. I'm so happy to be able to experience life again, joke with friends and family... basically be back to myself.... Merry Christmas all!!
Merry Christmas everyone, sitting here running my IV before waking up Denise and reflecting. Its been one hell of a year for many of us. Some are doing quite well, and others are still suffering. I hope this season brings a reprieve for all. This is the first Christmas morning in my life that I did not have to do any respiratory treatments, still amazes me.
If you are interested in looking at all of Jim's transplant pictures here are 2 site you can check out:
Last but not least, thank you to Jim's donor and his donors family. Click here to become an organ donor!