Thursday, June 24, 2010

5 Week Anniversary

Happy 5 week anniversary to Jim's new lungs and life! I still find it hard to believe that this happened. It really does seem like a dream...a VERY AWESOME dream!

A medical documentary just came on TV about a doctor trying to perform a double lung transplant on little sleep. Oh jeez! How do you perform a double lung transplant perfectly perky let alone on little sleep?! If this were on TV pre-transplant it would no longer be playing in my house!

Sometimes I wonder what went on behind the scenes that day and the day that we had the dry run. How many people really are involved in the whole ordeal? Do they get excited, scared, nervous? I can't say that it doesn't creep me out just a little bit. And seriously, do they really carry the organs in a cooler? I guess so...they just showed it on the documentary. WOW!

Jim did well in RT and PT today. He did 45 minutes on the treadmill and completed all of the PT. Looks like taking the pain meds are helping! He didn't seem half as worn out today as he had other days after RT and PT. He did negotiate a deal with the RT/PT folks. Instead of going to Philly every Mon., Tues and Thurs., Jim will be going on Monday and Thursday's only and do his 3rd day of RT/PT at home!

This evening he was very anxious and felt beside himself. I am certain it is from all of the meds that he is taking. Prednisone alone will make you feel like you want to jump out of your own skin!

Now on to our Thursday night ritual...
Guess what we do on Thursdays? We get the meds set up for the week!
I know you're probably wondering... how does he know what he should be taking, how much and when?" We thought the same thing when we got home with our "box o drugs" from the hospital. The first time we tried to fill the organizer it took awhile and we knew there had to be an easier way than reading each one off and trying to decide when to take it, if it needed to be taken with food etc.

The answer is.........
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PICTURES!!!

Jim puts the empty HUMONGOUS pill organizer on the table in front of him. I get out my phone with pictures of the meds and time of day that they are to be taken. I then take each bottle, look at the picture and tell Jim what time of day each pill should be taken. Pretty cool, huh?

This really does work well for us and we get quicker at it each time.

Thank you to our donor and our donor's family!
Just a few clicks can change so many lives! http://www.donatelife.net/

3 comments:

  1. great post yet again Denise, you are doing a much better job than I can do. Thank you, and thank you all for your love and caring this has been such an eye opening experiance. People really do care for another more than any of us really know.

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  2. Aww. That was so sweet, Sheldon! You have an amazing wife. Love you both.

    Happy Anniversary! I cannot believe it has been 5 weeks already. You have made excellent progress. I am so proud of you. Thank you for sharing your experience.

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  3. Fantastic creative way to organize a daunting task of taking meds! Denise you rock! I'm adding this to my bag of nuring tricks!

    Karen P

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