Today was a GREAT DAY! We are both hoping this is a trend that will last. Jim ate well today and had a limited amount of stomach pain. He is still at 136lbs but I feel better knowing that he had some good "meals". I was seriously considering calling the hospital Thursday because he looked so bad. He talked me out of it...
We met up with a friend from Team Sheldon for a cup of SBX. She had her Team Sheldon shirt and Jim had his "Transplant Inside" shirt on. After SBX we headed to my brother's house. I had a nice relaxing swim in their pool and Jim hung out on the porch. Today was the first day Jim has been out of the house since we came home except for his rides to Philly. It seemed to really perk him up!
Jim and I were talking about some different things we have noticed post tx. They seem trivial to the average person but to us and I'm assuming most people in the CF community, it was pretty cool!
- I didn't have to ask Jim to give me the mouthpiece parts to his nebulizer when I turned on the dishwasher. No need for them anymore!
- I put some lavender scented hand lotion on right before I went to bed. After I did it I realized that it probably wasn't a good idea because it would bother Jim's lungs. Well, guess what?? It didn't! He even said that it smelled really good!
- The Weather Channel had an "Air Quality Action Alert". Jim's reply: "Huh, I didn't notice a thing.".
I was reading the back of this and noticed that the bottle said that you should "Breath deeply for best results"! That's definitely something that Jim can do now and actually enjoy!
Sorry oxygen, you helped us when we needed you but we won't be needing you anymore!
Please consider being an organ donor! http://www.donatelife.net/