Sunday, May 30, 2010

Meet Me at Mary's Place

Slept well last night and woke up with the song Meet Me at Mary's Place (Bruce Springsteen is his favorite) in his head. He then had a moment of WOW and for the first time got emotional about the fact that he received new lungs. I have seen him cry a total of 5 times in our almost 17 years of marriage.

The rash on his mouth, throat etc. are a little better.

Had a some breakfast and his stomach still felt uncomfortable.

One chest tube was removed and one is remaining.

Dr. Ahya was in and said the xray is the same. His Prograph level is at 6.4. While the doctor was listening to his chest it blew my mind that Jim didn't cough like crazy afterwards! The respiratory therapist said his lungs sound good. They are holding off on doing the barium test.

A woman with emphysema on the floor had a dry run for a double lung transplant today. I send much LOVE and STRENGTH to those people I never met. It puts chills down my spine, makes my stomach turn, my body tremble, brings back horrible memories and also makes me realize how blessed we are to get where we are today. TYD&DF!

He had belly pain after eating lunch (turkey, mashed potatoes, green beans, chick noodle soup).

Walked one lap around the nurses station. First half with 4 liters of O2 and second half with 2 liters of O2! Both times his O2 saturation level was at 97%!!!! There is a chance that he may be taken off the O2 by tomorrow...let's hope.

He only had pudding for dinner and didn't eat all of it. A few hours later he had a bout of vomiting. Our concern was that he may have lost some of the several medications he took earlier. The nurse told us that when they take blood work in the morning they check specific counts and determine if/how to adjust any of the medications.

Whenever he goes to the bathroom he gets extremely cold. Once he is back in bed for a bit he warms up and is ok. Has this ever happened to any of our CF friends?

Jim's best friend and his awesome wife came to visit and got Jim laughing (ouch because of chest tube). Thanks for coming guys! We love you!

Quotes of the day:
"I feel like a gang-buster this morning!"
"I feel like shit"
"That's discusting and you should be ashamed of yourself". To nurse that gave him to 2 bottles of stuff to drink that tasted like crap.
"The good thing is, my lungs feel good.". Regarding stomach pain.
"Throw that pudding away because I may chuck it at someone". Said after he vomitted.
"I ain't turkey stampin' nothin'. Leave that between you and Bekah!". Inside joke...
"WTF?" After a nurse jabbed him with a shot of heparin.

The quotes are getting better every day!!


Much love,

1 comment:

  1. Thank you for these updates Denise and thank you both for sharing your experience with us. We are praying for you. I can't imagine how hard it is. So thankful you are making such amazing progress. Blessings on your day.